Health Research Data: News and Events
- Government of Canada launches national consultations on digital and data transformation
- GloPID-R releases Principles of Data Sharing in Public Health Emergencies
- CIHR launches a catalyst grant on the analysis of CLSA Data
- CIHR launches a Personalized Medicine team grant with a focus on data analysis, management and protection
- Consultations on the Tri-Agency Research Data Management Draft Policy
- The Canadian Longitudinal Study on Aging (CLSA) released its first report on Health and Aging in Canada
- CLSA and the Canadian Urban Environmental Health Research Consortium (CANUE) are collaborating for research!
- The European Union’s General Data Protection Regulation (GDPR) was enforced on May 25, 2018.
- Healthy Behaviour Data Challenge: Announcing five winning teams!
- Healthy Behaviour Data Challenge: Phase 1 Finalists. Nine entries have been selected for further development and evaluation in the second phase of the Healthy Behaviour Data Challenge. To read about the work of the nine teams, visit the challenge website.
- CIHR’s Science, Knowledge Translation and Ethics Branch (SKTE) is pleased to announce that it will be providing support to Andriy Koval (University of British Columbia) to complete a two-year Health System Impact Fellowship working with the BC Observatory for Population and Public Health, BC Centre for Disease Control, and the BC Provincial Health Services Authority. Dr. Koval’s work is intended to improve the integrity and validity of case definitions for mental health and substance use (MHSU) conditions and build a robust system for surveillance and reporting on these chronic conditions. Congratulations to Dr. Koval!
- Compute Canada Webinar: Compute Canada and CIHR invite you to a webinar to learn about the advanced research computing resources and services available to the health research community. Discover how Canadian research teams are leveraging advanced research computing for world-class results and learn how Compute Canada is serving the health research community and how to gain access to their services. June 13th at 2:30 pm (English) and June 15th at 2:30 (French).
- The CIHR Science, Knowledge Translation and Ethics Branch (SKTE) and the Public Health Agency of Canada (PHAC) are partnering with the US Centers for Disease Control and the US Department of Health and Human Services on a Healthy Behaviour Data Challenge. The objective of the challenge is to identify and use creative new types of data and data sources to enhance public health surveillance of physical activity, sedentary behaviour and sleep. The challenge is being coordinated by the MaRS Discovery District. For more details, visit the challenge website.
- CIHR’s Science, Knowledge Translation and Ethics Branch (SKTE) is partnering on the Health System Impact Fellowship and will support up to two PhD graduates (post-docs) to complete one-year fellowships. These fellowships will provide highly-qualified individuals with a unique opportunity to apply their research and analytic talents to critical challenges in the growing field of data science, data management, and/or data stewardship within health system and related organizations.
- GloPID-R news: The Global Research Collaboration for Infectious Disease Preparedness (GloPID-R) is an international partnership of research funding organizations that work together to facilitate timely and effective research responses to significant outbreaks of new or re-emerging infectious diseases with pandemic potential. In pursuit of its mission to support the development of rapid and coordinated responses to outbreaks, the GloPID-R data sharing working group is developing its Principles for Data Sharing in Public Health Emergencies. These draft principles, shared on March 30, 2017, are available for comment until May 2, 2017.
- E-Rare Workshop on Data sharing and harmonization: E-Rare is organizing a workshop on data sharing and harmonization in order to promote those issues in the rare disease research community. The workshop will take place on the 4th of May in Berlin, Germany at the Ramada hotel and will be preceded by a poster session in the late afternoon of the 3rd of May. This workshop will be organized back to back to the RD-Connect, NeurOmics and EURenOmics meeting. Registration is open until April 7th, 2017. The number of places is limited and priority will be given to E-Rare funded projects. More information is available.
- Health Datapalooza brings together a diverse audience of over 1,600 people from the public and private sectors to learn how health and health care can be improved by harnessing the power of data. The conference brings data to life in ways that matter in health and health care. Each year, the meeting serves as a trusted gathering place for thought leaders and innovators that build momentum toward a vibrant health information economy. This year's conference promises to bring new energy to an action-packed event featuring top speakers representing a variety of industries.
Health Datapalooza takes place April 27-28, 2017 at the Washington Hilton, in Washington D.C.
- Data Day - Stories Data Tells - The Toronto Research Data Centre (RDC) is organizing the first annual Data Day: Stories Data Tell on April 27, 2017. The event will feature a keynote address by Dr. Valerie Tarasuk, who holds Programmatic Grants in Health and Health Equity funded by the CIHR Institute of Population and Public Health. Data Day is an opportunity for RDC researchers to present their research and data findings in a relaxed, collegial environment. Data Day is open to the public and will occur at Robarts Library, 130 St. George Street, in the Robert H. Blackburn Room, room 4036. Registration is now open.
- The 2017 Microbiome Summer School: Big Data Analytics for Omics Science - CIHR-CBW-CERC-BDRC - Partners and sponsors include Calcul Québec, the Canada Excellence Research Chair on microbiome, Université Laval, as well as multiple CIHR Institutes such as the Institute of Nutrition, Metabolism and Diabetes, the Institute of Musculoskeletal Health and Arthritis, the Institute of Circulatory and Respiratory Health, the Institute of Genetics and the Institute of Infection and Immunity.
The Microbiome Summer School will provide an introduction to the use of bioinformatics in microbiome reseasummer schoolrelated big data analytics. The summer school is targeted towards graduates, postgraduates, staff bioinformaticians, lab managers, and early to mid-career investigators and will take place from June 18- 22nd, 2017 in Quebec City, Quebec.
- Research Data Management Guidelines and Policies - Jessica Mankowski (Acting Manager, CIHR KT Strategy Unit)and Mark Leggott (Executive Director, Research Data Canada) will be presenting a webinar entitled Research Data Management Guidelines and Policies on February 22, 2017 14:00-15:00 (EST). The speakers will discuss the principles of research data management and highlight the recent Tri-Agency Statement of Principles on Digital Data Management. Registration is now open.
- Love Your Data Week (LYD) – Research data specialists will be celebrating Love Your Data week from February 13-17 this year. The 5-day international social media event is meant to help researchers take better care of their data by raising awareness and building a community to engage on topics related to research data management, sharing, preservation, reuse, and library-based research data services. The theme for 2017 is emphasizing data quality for researchers at any stage in their career. The LYD team will share practical tips, resources, and stories to help researchers at any stage in their career use good data practices. Visit the LYD webpage to learn more.
- Beall's List of Predatory Open Access Publishers – For the past seven years, Jeffrey Beall, an Associate Professor and librarian at the University of Colorado, has released his 2017 List of Predatory Publishers. The list includes fake and low- quality online science journals, with hundreds of new entries carrying Canadian names.
- Research Data Centre Program: request for proposals - Statistics Canada, together with the Canadian Institute for Health Information (CIHI), is launching a pilot project that will provide access to the 2006 Census linked to the Discharge Abstract Database (DAD) for 2006/07 - 2008/09. The 2006 Census was linked to the DAD for 2006/07- 2008/09 to support analysis of hospital use by sub-populations and socio-economic status of Canadians. Interested researchers are invited to submit a proposal by January 31, 2017. More details about the pilot and on how to submit a proposal are available here [ PDF (114 KB) - external link ].
- Research Data Canada – CIHR staff have published a guest blog on the Research Data Canada (RDC) website. The piece, entitled Maximizing Health Research Data Benefits in Public Health Emergencies: A Canadian Institutes of Health Research (CIHR) Perspective, discusses the need to balance timely access to data with ethical, legal and social considerations during public health emergencies. RDC works with stakeholders to ensure research data is available to support innovation that benefits all Canadians.
- Canadian Institute of Health Research - Institute of Genetics – A new 2017 funding opportunity, The Summer Studentship Health research award for Undergraduate Students in Computational Biology, has been launched by CIHR – Institute of Genetics for undergraduate students in life sciences, mathematics, and computer sciences. Program is now launched; application deadline is January 17th, 2017.
- Compute Canada – Led by Compute Canada, the fastest, long-distance, academic data transfer, known in Canada, was successfully demonstrated at the SC16, the world's largest supercomputing conference.
- Research Data Canada – RDC announces that it is launching the Best Practices Series with Unique Identifiers: Current Landscape and Future Trends.
UBC Library Contributes Search Interface to Federated Research Data Repository – Portage and Compute Canada have partnered with the University of British Columbia Library in adopting their UBC Open Collections user interface. This search tool has been selected as the discovery interface for the Federated Research Data Repository (FRDR) software being developed by Compute Canada and Portage. Among the features of the repository is a federated framework to allow the research data in Canadian data repositories to be discovered from a single, coherent search engine. For more information, please visit the Portage webpage.
Digital Health Week – A Conversation with Canadians (November 14-20) - During Digital Health Week, join the Better Health Together community of Supporting Organizations for a conversation about digital health. For more information on events and registration please visit the Better Health Together webpage.
Open Data Science Symposium: How Open Data and Open Science are Transforming Biomedical Research – The Open Data Science Symposium is on December 1, 2016, at 8:30-4:00 p.m. The Symposium is open to the public and will be available through a webcast. Registration is free and open until November 18, 2016.
Call for Proposals for the CHMS Biobank – From November 1 to December 31, 2016 Statistics Canada is inviting researchers to apply for access to blood, urine and DNA samples from the Canadian Health Measures Survey (CHMS) Biobank for use in health studies. The biospecimens are available to any Canadian researcher who completes a review process and would benefit from a national population survey of approximately 5,600 participants per collection cycle. The CHMS is a Statistics Canada survey designed to collect valuable information about the health of Canadians. For more information about the application, review process and biospecimen availability visit the CHMS website.
International Human Epigenome Consortium (IHEC) major coordinated paper release – An international collection of 41 coordinated papers was released in several high-impact publications, including Cell and Cell Press-associated journals. Seven included manuscripts were led, or received significant contributions from the Canadian Epigenetics, Environment and Health Research Consortium. For more information, please see the IHEC News Release or Cell. In addition, the IHEC Data Portal has been updated with new functionality, more datasets and dedicated portal sessions for a number of the papers. Over 7,400 datasets are now on the portal, representing over 2,100 human reference epigenomes from across the consortium!
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