James Lind Alliance: Adult Fibromyalgia Priority Setting Partnership

The aim of the Adult Fibromyalgia Priority Setting Partnership (PSP) was to identify the unanswered questions about the management of adult fibromyalgia from patient/caregiver and clinical perspectives and then prioritize those that patients/caregivers and clinicians agreed were the most important. CIHR – IMHA completed this PSP in 2016 and is pleased to share the Top 10 priorities that emerged from a workshop that was held in May, 2016. Please visit the James Lind Alliance PSP page for the Fibromyalgia (Canada) Top 10 priorities.

Contact Information

Nicole Szajcz-Keller
Assistant Director
CIHR Institute of Musculoskeletal Health and Arthritis
Phone: 204-318-2551
Nicole.Szajcz-Keller@umanitoba.ca

Background

This PSP was a Canadian project overseen by the Institute of Musculoskeletal Health and Arthritis (IMHA) of the Canadian Institutes of Health Research (CIHR), in consultation with the National Institute for Health Research Evaluation, Trials and Studies Coordinating Centre (NETSCC), UK. Its aim was to provide an infrastructure and process to help patients/caregivers and clinicians work together to agree which are the most important treatment uncertainties affecting their particular interest, in order to influence the prioritization of future research in that area. The James Lind Alliance (JLA) defines an uncertainty as a “known unknown” – in this case relating to the effects of treatment. Please visit the James Lind Alliance website for more information about Priority Setting Partnerships.

Objectives

The objectives of the Adult Fibromyalgia PSP were to:

  • engage patients, caregivers, and clinicians in a priority-setting exercise that would identify the scope of uncertainties in the management of adult fibromyalgia;
  • agree by consensus on a prioritized list of those uncertainties, for research;
  • publicize the results of the PSP and process;
  • take the results to research funding bodies to be considered for funding.

Please read the Protocol for more information including partner criteria, a list of steering committee members, and methodology.

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